For our patients and the public – get actively involved in our research
The BRC is keen for patients and lay people to be actively involved in our work.
We believe this kind of active input makes our research better. Patient and public involvement (PPI) in research can lead to treatments that better meet the needs of users and the public, and to research results that are more likely to be put into practice.
How could you help our research?
There are many ways patients and members of the public can get actively involved in our research, from helping to design research projects, to taking part in focus groups or helping with recruitment.
Patients and the public can:
- look at research from a practical point of view and suggest practical solutions to problems
- help improve patient leaflets and invitation letters so they are accessible
- help co-produce reports on research findings
- advise us how to tell people about our research
“What I like is that it is a two-way conversation,” says one of our members, “We can suggest ideas for research or changes. For example, I offered to help improve the patient information leaflets because I thought they should be clearer about things like the side effects or symptoms patients might expect with certain treatments.”
Join our online Patient and Public Involvement Network
Opportunities for you
By becoming part of our network, you will receive opportunities to get involved in the research, including but not limited to:
- Coming to one-off meetings and focus groups to talk with researchers about their work
- Inputting on documents and providing feedback over email or on the telephone
- Sitting on a panel of people which meets regularly to input into a particular research project
- Becoming a member of a research steering group to help oversee research
Being part of the network means you can select the opportunities that interest you, there is no obligation to get involved in anything on a regular basis.
To join the network, simply email the PPI team on firstname.lastname@example.org
How have the network helped so far?
You can read about the impact that members of our network have had on research, in our case study booklet.
Find out more
There are lots of other resources and support for patients and the public to get involved in research. You can also:
- visit People in Research which provides information specifically for the public - researchers wanting to find members of the public to get involved in their research also advertise on the site
- look at the resources on the INVOLVE website – INVOLVE is a national advisory group supporting greater public involvement in NHS and public health research and is funded by the National Institute for Health Research (NIHR).
- if you are a patient, ask if there is a patient group you might join.
If you just want to know more about our research, read our news stories or look out for public events and lectures on the UCL’s event guide.