Practical guides to patient involvement

The NIHR Centre for Engagement and Dissemination (CED) provides a wide range of resources and publications for researchers including:

  •  Briefing notes for researchers - public involvement in NHS, health and social care research - an updated version of lengthy publication with practical checklists on running committees, patient panels and other activities.
  • Learning for Involvement - a website that provides more information on developing your involvement skills.
  • Payment guidance NIHR 2025 - a detailed guide on paying patients and the public for their involvement, covering tax, welfare benefits national insurance and employment law issues.
  • UCL Public Engagement Unit - the Unit supports UCL staff organising public engagement activities. As well as toolkits and advice on evaluation, they offer funding through a small grants scheme. Beacon bursaries are available three times a year providing up to £2,000 per project. The Unit also helps find external funding.
  • Research Support Service (RSS) - The RSS provides expert support and advice to applied health, public health and social care researchers on the design and delivery of research and the development of research funding applications.
  • Standards for public involvement in research - a set standards for public involvement that have been developed to improve quality and consistency of public involvement in research.
Close up of PPI leaflet