Patient and public input into the use of data in research is a priority for the BRC.
Key features include:
- Engagement activities focusing on interactive experiences aimed at demystifying the use of data in research
- Workshops and focus groups with local community groups to understand the concerns and wishes of people not normally involved in research
- Coproduction, by patients and the public working with researchers, of principles for the use of data in research at UCLH.
We also run a Citizens Data Network of people interested in inputting into the way data is used in research.